Ξ  

 Sobre a Deficiência Visual

Blindness and Children: Developing a sense of self

David H. Warren

Blind Swimmer (Effect of a Touch) - MaxErnst, 1934
Blind Swimmer (Effect of a Touch) - MaxErnst, 1934


The neonate does not have a concept of the self as an entity independent of other people or the physical world. The older child has a well-developed sense of him- or herself, not only as an entity distinct from other people and things, but as an independent person with a unique set of emotions, desires, fears, abilities, and other personal characteristics.

The development of the sense of self is the topic of this chapter.

The adaptive tasks begin in infancy, when the neonate must acquire the concept of the distinction of the self from the rest of the world. Subsequently, a concept of body image must be acquired, and the child must be able to represent the self in linguistic usage. The child's realization of the facts and implications of his or her visual impairment are of particular interest. Gradually, and in large part as a consequence of the process of adapting to the demands of the social world, the child acquires a set of characteristics that are often collectively called "personality." With respect to a sense of self, not least among these is the notion of locus of control, which has to do with the child's perception of the extent to which his or her personal situation is primarily under the control of external as opposed to internal factors.

Self-concept in infancy

The general argument is made that initially the infant, with or without vision, does not have a sense of self as distinct from the physical or social world and thus must acquire the distinction. Ordinarily the development of this concept depends on many sources of information, directly from the physical environment as well as indirectly from interactions with other people. Since vision is a potentially rich source of such information, the absence of vision may mean that the concept of self as distinct from the world develops along alternative paths.

Applied to the blind infant, this formulation is expressed in different ways depending on the writer's theoretical orientation. Writers in the psychoanalytic tradition, for example, use the term "ego development." For the most part this term is not meant in the restrictive sense of a personality construct, but encompasses aspects of perceptual, cognitive, and motor functioning. Broadly speaking, it has to do with the emotional and conceptual separation of the self (the "ego") from the rest of the world. Sandier (1963) hypothesized that lack of vision necessarily alters the course of ego development: "Because of the absence of a major sensory modality, the ego development of the blind child will tend to proceed along different lines from that of the sighted . . . the ego development of the blind child is hindered or distorted by his sensory handicap" (p. 344). Further, "Ego deformation resulting from the blindness occurs in its own right, and is linked with a path of development which basically cannot be reversed by the environment, although its outcome can be modified to a large extent by suitable mothering" (p.346).

Fraiberg and Freedman (1964), while agreeing that the lack of vision changes the situation, were more positive in their view of the potential outcome: "We must assume from the evidence presented by large numbers of healthy and educable blind children that other sensory modalities can substitute for vision in the process of ego formation. There remain the questions: how are these substitutions made, and how does ego formation take place in the absence of vision?" (p. 114).

Scott (1969) approached the issue from a more cognitive point of view but was just as pessimistic as Sandier (1963): "The differentiation between self and environment begins to emerge at this point [third to fourth month]. By differentiating objects from one another, by manipulating them, and by observing his impact upon them, the [sighted] child is slowly able to distinguish the boundary between self and non-self. This process is greatly frustrated in the blind child" (p. 1030). Scott went on to delineate specific areas of behavior, such as linguistic usage and social interactions, that he argued are necessarily affected adversely by the lack of vision. Scott summarized the problems as three: a restriction in the extent of the environment that the infant can engage, a lesser stimulus value of the part of the environment that is encountered, and a lack of appreciation of the infant's impact on the objects manipulated.

Adapting to the social world

A still more cognitively based formulation is also available. According to Piaget's (1954) account of the course of sensorimotor development in the sighted infant, for the first four months the child's activity is tied up with actions related to his or her own body and its sensations: it is only with the substage of secondary circular reactions, beginning around four months of age, that the infant begins to show an effective orientation to the external world and to the perceptual stimulation it provides. This timing squares well with the four- to five-month normative onset of reaching outward to visually perceived objects. Without vision to elicit reaching outward, the blind infant might well prolong the prior substage of primary circular reactions, in which activity is directed to his or her own body.

The problem in trying to make sense of all this is that the available evidence is not good. It may be reasonable to accept on face value the various observations, for example that around mid-year, infants with visual impairments do not orient as much to the external world as sighted infants do, but it is a substantial leap to the conclusion that as a consequence of this, concepts about the distinction between the self and the external world differ between blind and sighted infants. From the evidence that is available, I can see no objective basis for drawing conclusions about the quality of the self-concept of blind infants. Absent direct evidence, inferences can be drawn as easily in one direction as the other.

The development of self-concept after infancy

The issue of self-concept in children is difficult to conceptualize and to evaluate. These difficulties arise because the term is used by different people in very different ways and is, correspondingly, evaluated in very different ways. "Body image" captures one set of perceptual-cognitive meanings, referring to the conception of the body and its relationship to the external world. There is also a cluster of work that interprets language as an indicator of self-concept. Yet another approach regards self-concept as a set of personality variables. We will review each of these in turn.

Body image

At one level, "body image" refers to a child's knowledge of the parts of the body and of the relationships among those parts (e.g., the fingers are connected to the hand). A second level is exemplified by Siegel and Murphy (1970), who defined body image as the mental picture that one has of one's body in space. Combining these, Mills (1970) defined body image as "a knowledge of body parts, how the parts relate to each other, how the parts may be utilized both individually and collectively for purposeful activity, and how the parts relate to the child's spatial environment" (p. 81). Various methods have been used to evaluate the child's body image.

Constructive methods. One approach asks the child to construct the body.

For example, Millar (1973d) assessed blind children's ability to draw the human body. The children had lost vision within the first two years of life and ranged in age from 6 to 12 years. They were asked to draw a human figure using the Sewell Raised Line Drawing Kit, and to name each part of the figure as they drew it. The drawings were scored for body scheme (number and recognizability of main body parts), cohesion (correct joining of body parts), detail, and alignment to the floor.

There was a general improvement with age. As in other studies of the drawings of blind children (e.g., Kennedy, 1980), some of the drawings were clearly recognizable while others were unidentifiable. The younger children, if they drew recognizable elements, tended to draw legs, arms, and the head.

Witkin et al. (1968) used a battery of tests designed to evaluate cognitive articulation in children who were blind from birth and ranged from 12 to 19 years of age. Among the tasks was a clay modeling test intended to show body concept. The child was asked simply to make a person. The products were rated on a five-point scale, progressing from unarticulated lumps to refined human figures without major distortions. Performance in clay modeling of the human figure was, like most other measures of cognitive articulation, unrelated to I Q Unfortunately, no relationship of modeling scores to CA was reported, although it was noted that there were considerable individual differences in performance.

Great caution must be used in interpreting the results of drawing and modeling tasks as bearing on the quality of body image. The primary problem is that failure to draw or sculpt a realistic model may reflect nothing more than the child's lack of physical skill in dealing with the medium. To be sure, Millar (1973d) was concerned strictly with the nature of representation, without reference to an underlying "concept" of body image. On the other hand, the discussion of Witkin et al. (1968) implied, inappropriately, that the quality of the child's body concept may be validly tapped by such constructive techniques.

Though still constructive, the method used by Kephart et al. (1974) was designed to avoid the difficulty of physical skills. They administered a verbal test to evaluate blind children's knowledge of the parts of the body and their relationships. The children were asked to construct an imaginary boy or girl by describing the various necessary components.

The children ranged from five to seven years of age; the age of visual loss was not specified. There was a gradual increase with age in the completeness of information offered. Interestingly, although facial features gradually appeared with increasing age, ears and eyes were notably absent, as were fingers.

Formal scales. Cratty and Sams (1968) designed a detailed test of body image development of children with visual impairments and reported the results of the test for a large and diverse group of children in the 5- to 16-year age range. The group was mixed in gender and most had lost sight at birth. The children varied widely in IQ, with scores ranging from 57 to 144. The partially sighted subgroup had an average IQ^of 88, in contrast to the average of 107 for the blind subset. While the difference was not statistically significant, it signals the need for caution in interpreting any differences between the blind and partially sighted groups.

The test was divided into five parts, body planes (child's identification of their sides, front, or back), body parts (identification of specific parts of the child's own body), body movement (performing directed movement of parts of the entire body), laterality (identification of the body as well as of the body in relation to external objects), and directionality (identifying the right and left sides of other people and objects.)

Total test scores generally showed improved performance with increasing age in the 5- to 16-year range. The age differences appeared to be concentrated in the body parts and the directionality items. There were no significant gender differences. There was generally better performance by the blind group than the partially sighted group, although this must be qualified in light of the subsample differences in IQ^noted above.

Children with an IQ^ of 80 or greater tended to perform better than those with an IQ^ below 80. This difference did not appear for the laterality and directionality subscales. In any case, the covariation of IQ^ and visual status in the sample makes a conclusion about either variable risky, as Cratty and Sams noted.

Some important points about the developmental sequence of the acquisition of body image emerge from the data. Identification of body planes was performed well by even the youngest children. The body parts subscale revealed a general developmental progression of knowledge from the upper to the lower body, and a tendency for more extreme parts (e.g., fingers or hands) to be more readily identified than intermediate parts (e.g., forearm or thigh), particularly when a right-left distinction was involved.

Watemberg, Cernak, and Henderson (1986) assessed the ability of congenitally blind children in the 7- to 14-year age range to identify left-right relationships, with respect both to the child's own body and to external relationships. The children's ability to deal with the left-right relationships of their own body generally improved with age, and it was usually better than their ability to deal with external right-left spatial relationships. (Other aspects of laterality are reviewed in Chapter 4.)

Training. Several programs have been designed to improve body image through training. Cratty and Sams (1968) presented a justification for such efforts, citing the importance of a strong body image as a conceptual basis for structuring external space. The proposed program stressed the importance of several sensory modalities, as well as the need for the child to build "cognitive bridges" to integrate information from various sources. Cratty and Sams identified four phases of body image development: (1) body planes, parts, and movements (two to five years), (2) left-right discrimination (five to seven years), (3) complex judgments of the body and of body-object relationships (six to eight years), and (4) understanding of another person's reference system. A number of exercises were designed to foster adequate progress through these stages.

The program stressed auditory, motor, tactual, and kinesthetic aspects as well as verbal mediation. It emphasized experiences appropriate to the developmental level of the child, and it stressed the necessity of providing a variety of activities to produce adequate generalization of concepts. Finally, it noted the importance of a gradual externalization of body image concepts to build an idea of external space using the body image as a basis.

Based on Cratty's work, Walker (1970, 1971, cited by Walker, 1973) presented a structured set of lessons in body image training to groups of kindergarten and early elementary school children. The body image test of Cratty and Sams (1968) was used for evaluation. The results for the kindergarten children indicated that "the program was effective in improving the body image" (p. 224). The effects were apparently greater for children without than with useful vision. These subgroups apparently differed in intelligence, however, so it is not clear whether more effective training was related to the severity of visual loss or to variation in intellectual skills.

Summary. Age-related improvement is evident from a variety of methods of evaluating body image. Although the available evidence is not completely convincing, good body image also appears to be related to partial vision and to higher intelligence.

Self-concept as expressed in language

Self-concept can also be expressed in language. For the most part, this literature takes as a starting point the fact that children with visual impairments often use personal pronouns differently than do sighted children. We can (albeit with due caution) examine the nature of these phenomena, particularly the nature of the reference to self in the child's language, to make inferences about the child's self-concept.

Several reports of the misuse of personal pronouns were discussed in Chapter 5. For example, Fraiberg and Adelson (1976) discussed the delayed use of the inventive "I," as well as other misuse of personal pronouns such as referring to one's self in the third person, in terms of difficulties with self-representation in the blind child. They also reasoned that such difficulties might emerge in the play situation, in which objects may be used as symbolic representations of the self.

Rogers and Puchalski (1984b) reported an empirical study directed to this issue. The procedure involved having the child perform several "pretend" scenarios involving a breakfast setting, a doll-bathing setting, and a bedtime setting. After the child's modeling of each setting with conventional props, one prop was changed to neutral (neither appropriate nor inappropriate to the setting). In a third phase, the prop was changed to counterconventional (inappropriate). The child's activities were noted, particularly for evidence of engaging in symbolic "pretend" actions. About half of the children did so.

There were some interesting differences, and even more interesting similarities, between the children who showed symbolic activities and those who did not. There was no relationship between age (range 18 to 37 months) and symbolic activities, nor was there any difference associated with the child's degree of vision loss (blind vs. partially sighted). Those who showed symbolic actions tended more than the others to use the word "no" in their language interactions. On the face of it, the use of "no" is taken as an assertion of independence, but its use also signifies that the child conceptualizes him- or herself as separate and independent - the essence of self-representation. The use of the word "no" can be representational in another way, as denoting the opposite of a situation; for example, the relationship between "milk" and "no milk" is a conceptual one. There was also a significant relationship between symbolic actions and the use of two-word combinations in the child's language.

It is not clear what the causal relationships among these developmental indices may be, although it is reasonable to suggest that the conceptual ability to use symbolic representation underlies both the emergence of relational language forms ("no" or two-word combinations) and the ability to represent the self symbolically in play as well as in other conceptual ways.

Self-concept as an aspect of personality

Scott's (1968) words (though with gender-appropriate apologies!) provide a useful introduction to this section: "By 'self-concept' I mean an individual's perception of himself. A man's self-concept consists of the attitudes, feelings and beliefs he has about the kind of person he is, his strengths and weaknesses, his potentials and limitations, his characteristic qualities, and so forth. These things are expressed both in his actions and in his responses to the questions, 'Who am I?', 'What kind of a person am I?'" (pp. 14-15). We will begin our consideration with research that has addressed self-concept directly, then move to related personality variables.

Much of the evidence about self-concept comes from studies whose primary focus has been comparative, but some limited differential information about children with visual impairments can nevertheless be gleaned.

Jervis (1959) used an interview that probed the child's interests, self-evaluations, and expectations for the future, and a modified Qjsort procedure that was designed to evaluate the discrepancy between the child's self-perceived characteristics and traits he or she would have liked to have. The subjects were 20 blind residential school adolescents with visual loss before the third birthday. As a group, they were generally apprehensive about the future and expressed limited goals for themselves. Interestingly, in relation to these relatively low self-expectations, 18 of the 20 felt that not enough was expected of them. Asked to mention their personal strengths, 14 noted their ability to get along with other people.

Jervis concluded that in comparison with sighted adolescents, these subjects tended to have either a strongly positive or a strongly negative attitude about themselves: "It is apparently quite difficult for a blind person to take a middle ground; either he is forced into having a negative self-concept or if he is fortunate enough to find positive attributes in his personality he tends to exaggerate them" (p. 23). Unfortunately, no evidence was presented about which factors might have tended to push an individual in one or the other direction.

Zunich and Ledwith (1965) also noted the tendency of fourth grade children to use highly positive or negative traits to describe themselves, using Lipsitt's (1958) self-concept scale. The girls generally tended to rate themselves higher on the positive traits than did the boys. Unfortunately no relationships were reported between self-evaluations and factors that might be expected to influence them, such as parental acceptance.

On the somewhat more positive side, Coker (1979) found elementary school children in both residential and integrated schools to have a generally positive self-image, as measured by the Piers-Harris Self Concept Test. Coker was also concerned with the relative academic achievement of the children, evaluated by the Stanford Achievement Test. Interestingly, the achievement of children from both types of school were equivalent and age-appropriate at the third grade, but while children from the residential schools maintained their achievement through sixth grade, the achievement of the integrated school children progressively declined. The study provided an ideal opportunity to examine the relationship between self-concept and achievement, but unfortunately no relationship was reported, despite the availability of the data.

The Tennessee Self Concept Scale (TCSC) was used by both Meighan (1971) and Head (1979) to evaluate the self-concept of adolescents. Both samples were heterogeneous with respect to ethnicity, gender, and severity of visual loss, as well as age. Neither study found any remarkable differences in self-concept scores related to these variables, or to school setting or academic achievement, and the appropriateness of the TCSC for this population has to be questioned.

Jan et al. (1977) reported the reactions of children to their visual impairment. According to parental reports, a small number of children (5%) were "quite preoccupied" by their visual condition, whereas 21% denied any adverse feelings about their impairment. In contrast to these relative extremes, 70% of the children were judged to have a "realistic" attitude toward their visual impairment. That is, they realized that the impairment imposed some limitations on their activities, but were not unduly depressed by the recognition. This relatively healthy picture was mirrored in evaluations by the children's teachers. It was also reflected in relatively low incidence of autistic symptoms, as evaluated by this clinically experienced team of researchers. Unfortunately it is not possible to assess any age differences from the data.

Summary. Overall, this body of work is disappointing in its impact. While several studies have evaluated individual differences, there are few findings of interest, and we have to wonder about the adequacy of conceptualization and evaluation of self-concept in this research. Furthermore, self-image has not generally been evaluated in relation to areas for which it might have functional implications, such as school performance or level of aspiration. Cook-Clampert (1981) noted that the research is unsatisfying and raised the questions (which are even now still unanswered): "(1) How does the child's visual impairment influence the family's rearing methods and thus the development of the child's self-concept? (2) Is there a correlation between the extent of visual loss and the growth of a positive self-concept?" (p. 238).

Realization of blindness. Speaking primarily of partially sighted children, Winton (1970) stressed the need for informing the child as early as possible of his or her handicap, so that "he can thus adjust to his difficulties by making appropriate indications to himself. He can answer his questions about why he cannot do all the things that other children can do" (p. 21). In view of the desirability of a stable self-concept, this advice seems wise: if the child's realization of his or her visual impairment is sudden, an abrupt change in self-concept may result, with negative implications for overall adjustment.

On the other hand, there is reason to avoid overemphasizing the fact of visual impairment. In their study of blind adults with respect to vocational success, Bauman and Yoder (1966) found that the more self-sufficient and mobile individuals tended to come from families that had not made an issue of the visual impairment: "The pattern of family relationships is more likely to be the pattern it would have been had the individual had normal vision" (p. 69).

Other aspects of personality

Personality tests have a long history, and they have been used no less avidly to evaluate people with visual impairments than they have with the sighted population. In my view, the result is disappointing; it is not very helpful to know that the average child with a visual impairment is more or less anxious than the average child with vision. It would be important to know what the functional implications of such a difference are, but the body of research is remarkably silent on such issues. In brief, the main themes that appear in this literature are the following.

Introversion /extroversion

In his study of 9- to 14-year-old congenitally blind residential school children, Zahran (1965) found no gender differences in extroversion using the Junior Maudsley Personality Inventory. Brown (1938), on the other hand, evaluated introversion and extroversion in residential school adolescents and found a slight difference in gender, with boys tending to be more extroverted than girls. Neither age nor IQ_was significantly related to introversion/extroversion, and no relationships were reported with visual experience variables.

Studying partially sighted children, Pintner and Forlano (1943) found that girls were markedly more introverted than boys in the elementary grades, but that no such differences appeared in children above the sixth grade. Unfortunately, no relationships were reported between introversion and adjustment scores. Boys and girls did not tend to differ on the adjustment scales, however, and it is possible to infer cautiously that the relatively higher extroversion of the younger boys was not associated with better adjustment.

Summary. No consistent pattern of relationship of introversion-extroversion to age, gender, or other variables appears in this group of studies, and indeed several internal contradictions characterize the findings. The relationship to visual characteristics has apparently not been examined.

Dominance /submissiveness and aggression

Using the Bernreuter Personality Inventory, Petrucci (1953) found a pattern of submissiveness in the interpersonal relationships of adolescents with visual impairments. Other authors, for example Bauman (1964), have mentioned similar tendencies, and in this case there is some evidence about how dominance/submissiveness is related to other variables. For example, Greenberg, Allison, Fewell, and Rich (1957) found a general tendency to submissiveness in their study of residential school adolescents, and dominance scores generally increased from the sixth to the twelfth grade level. This age progression was considerably stronger for boys than for girls.

Greenberg and Jordan (1957) hypothesized that higher interpersonal dominance would be found in blind than in partially sighted adolescents.

Contrary to the hypothesis, no difference was found between the groups using the Bernreuter Personality Inventory, and in fact on the California 'F' scale, which measures authoritarianism, the group with partial vision group scored higher.

In her intensive study of mother-child dyads, Imamura (1965) included several variables related to dominance, including succorance (requesting help), submission, and self-reliance. The children, who were three to six years of age (and therefore younger than those in the foregoing studies), were rated on these characteristics in a series of observational sessions. The blind children tended to be less dominant, though no more submissive, than an archival group of sighted children. Of more interest was Imamura's exploration of the relationships between the blind children's characteristics and the social-interactive characteristics of their mothers in relation to the child. Most striking was the strong positive correlation between the child's submissiveness and the mother's dominance. That is, children may respond to maternal dominance by adopting a submissive role. (The dynamics may be different for sighted children and their mothers, since no such correlation emerged in that group.)

Imamura also evaluated the dimensions of sociable aggression (aggression with the intent of being sociable) and nonsociable aggression (aggression with the intent to harm). There was no consistent pattern of relationships between maternal characteristics and child behaviors, although curiously, child sociable aggression was positively correlated with maternal nonsociable aggression.

Summary. No remarkable findings emerge from this body of work, although some evidence of individual differences has been reported. The research model used by Imamura, in which the child's characteristics are assessed in relation to features of the social environment, offers more promise than the simple assessment of personality variables using standardized tests.

Neuroticism

Petrucci (1953) reported a high incidence of neuroticism in adolescents with visual impairments, but no gender differences were reported. However, Brown (1939), using a variation of the Thurstone Personality Schedule, did find the distribution of neuroticism scores for blind residential school students higher for girls than for boys.

Greenberg and Jordan (1957), also evaluating high school residential students, found no differences between partially sighted and blind children on the neuroticism scale of the Bernreuter inventory. As for the possible relation of neuroticism to age, Greenberg et al. (1957) found a generally high level of neuroticism in residential school children from grades 6 to 12, but no variation with age within this grade range.

Overall scores on neuroticism scales are unsatisfying, since the term covers a range of more specific difficulties. One such aspect is anxiety.

Hardy (1968) described the development of the Anxiety Scale for the Blind (ASB) as an alternative to the traditional Taylor Manifest Anxiety Scale (TMAS). Items were intensively screened by clinical experts. The ASB and the TMAS were each administered twice to 122 adolescents ranging in age from 13 to 22 years and varying in intelligence and degree of visual loss. Teacher ratings of students' anxiety were also obtained.

The correlations between teacher ratings of anxiety and ASB outcomes were statistically significant but not impressive. The correlation between the ASB and the TMAS was .74. There were no marked variations in anxiety scores as a function of severity of visual loss, although there was a tendency for the children with intermediate visual loss to score somewhat higher on anxiety. Anxiety scores generally increased with age, but this did not hold for the group with total blindness. Verbal intelligence was generally negatively correlated with anxiety scores; that is, students testing lower in intelligence tended to show higher anxiety scores. This relationship was, however, not found for the totally blind children.

Miller (1970) found similar results using the ASB. There were no overall differences between partially sighted and blind samples of ninth through twelfth graders, or between special class (EMR) and the regular residential school sample. Similarly, Wilhelm (1989) did not find consistent patterns of difference between partially sighted and blind children in the 6- to 17-year age range. Like Hardy (1968), Miller found a general increase in anxiety with increasing grade level. Miller attributed the increased anxiety to the older child's impending departure from the relatively secure residential school environment.

Summary. The literature on these interpersonal characteristics has been reported only briefly, since it is not at all clear in most instances what, if any, significance they might have. From any practical or theoretical point of view, it is of little value to know that children with visual impairments are more or less introverted, neurotic, or aggressive than sighted children, or for that matter that scores on these scales vary with age, intelligence, school placement, gender, or other individual differences variables. To be useful, research must couple the incidence characteristics of such factors with an analysis of their implications. For example, the question may be posed: are older children, with their higher neuroticism and anxiety ratings, more socially or personally dysfunctional? If not, then the knowledge is interesting but not important. If so, then additional questions arise. What factors lead to increased neuroticism and anxiety? How can they be ameliorated? How, in short, can the visually impaired child's situation be adjusted to optimize the characteristic in question, so that the child's capacity to respond adaptively to the demands of his or her existence can be maximized?

I have used the example of neuroticism, but the same points should be made about other personality characteristics as well. Researchers fall short of their obligations if they are content with evaluating characteristics without regard for the variables that influence them, and if they disregard the functional implications of those characteristics.

Knowledge about sex

A seriously understudied area of social development in children with visual impairments concerns knowledge of sex and sexual behavior. Cutsforth (1951), Gendel (1973), and Scholl (1974) discussed the specific problems that visual impairment creates for the child's acquisition of knowledge about physical and behavioral aspects of sex. However, there is very little empirical evidence about what children know about sex and how they acquire their knowledge. There is agreement that the problems of learning about sex are considerable. Perhaps the most important factor is that touch is taboo when the topic of learning is sex. Children with visual impairments are, as sighted children are, generally discouraged from gaining information about sex via tactual experience with others.

Thus the main problem is access to information. Information about sex is usually conveyed verbally by parents, siblings, and peers. Two factors seem relevant. Many parents are hesitant to discuss sex-related matters frankly with their children, and metaphoric explanations (such as "the stork") must be at least as puzzling to the child with a visual impairment as they are to the sighted child. Second, the stimulus for a parent's explanation is often the child's question; the child without vision may ask fewer questions of the parent or other informant.

Foulke and Uhde (1974) characterized the blind child's situation:

He knows about his own body because he can explore it freely. He is fairly well informed about the bodies of playmates of the same sex. He is less well informed about the bodies of playmates of the opposite sex. He is almost completely uninformed about adult bodies of either sex. By the time he reaches adolescence, he has been brought under the control of the taboos of his society, and is no longer free to explore any body but his own. (p. 194)

At the same time, they noted that "in the course of growing up, the blind child becomes aware of the emphasis on sexuality in our culture, and a reasonable consequence of this combination of ignorance and curiosity is the creation of bizarre theories concerning the anatomy and the functions of sex" (p. 194). Presumably this problem can only have become exacerbated during the intervening two decades.

Foulke and Uhde presented preliminary information from a questionnaire distributed to a large number of (mostly male) visually impaired adolescents and their parents and teachers. About half of the children reported having had discussions of sexual matters with their parents, but the reports of a majority of these indicated that they had been given misinformation or had misinterpreted the information given. More children reported having discussed sex with their friends than with their parents. Definitions of various sex terms were requested, and in general the results suggested a great deal of misunderstanding.

Similar work is lacking with younger children. It may be assumed, from the paucity of veridical information that Foulke and Uhde's adolescent informants had, that such study would reveal quite scanty knowledge among younger children as well.

While there are many discussions in the literature about the pros and cons of various approaches to sex education, there is appallingly little empirical information available about the actual knowledge that children and adolescents with visual impairments have about sex. Particularly in view of the heavy emphasis of contemporary popular culture on sexual matters, the need for effective sex education is critical. Nevertheless, the design of effective sex education must be based on knowledge of the actual state of affairs, and this is a significant gap that should be seriously addressed.

Locus of control

The term locus of control (LOC) is used to describe a person's perception of the extent to which he or she is in command of the events that affect his or her life. Internal LOC describes individuals who see themselves as exercising substantial control over their lives, while external LOC describes those who see themselves as being influenced by other people or by situational variables over which they have no control. Of course these represent the extremes of a dimension along which people vary continuously.

The question of LOC is interesting for the case of visual impairment.

According to Tait (1972c), the child with a significant visual impairment may have difficulty knowing when he or she has another person's attention and may thus frequently initiate unreciprocated social interactions because the other person is in fact not attending. Tait reasoned that this dynamic may lead to a sense of lack of control in social interactions and thus to a relatively external LOC. Indeed, Imamura (1965), studying three to six-year-old blind children, found a relatively low frequency of initiation by these children of social contact with the mother and other adults and children. Of the contacts that were initiated, a high proportion were succor ant (asking for help). Beyond this, though, the mothers of blind children were more likely to respond to such succorant contacts by "noncompliance," "refusal," and "ignoring." These are indeed the kinds of circumstances which would be expected to lead to relatively external LOC.

Dote-Kwan (1991) drew a somewhat different picture of these relationships. She found evidence of a greater sensitivity on the parts of preschool children to their mother's presence, in that the children tended, appropriately, to initiate fewer interactive behaviors when the mother was absent. This sensitivity may well have been mediated by a relatively high degree of partial vision in her sample. However, Dote-Kwan also found a much higher frequency of responsiveness by the mother to the child's requests for help than Imamura had reported.

Dote-Kwan suggested that the more effective interactive relationship between mothers and children that she found may have been due to the fact that all of the children in her sample were participating in an early intervention program.

Land and Vineberg (1965) did find a general skewing of the distribution of LOC scores (as measured by the Bialer-Cromwell Children's Locus of Control Scale) toward the external end of the scale; however, the variability within the group of 6- to 14-year-old children with visual impairments was great, and some showed as strongly internal LOC as their sighted peers.

More important for our interests is the relationship of LOC to several individual differences variables within the population of children with visual impairments.

CA, MA, and lQ. The trend for sighted children is increasing internalization of LOC with increasing CA, and this is generally interpreted as indicating a progressive personal independence as well as a realization that the child can exert control over the events that affect him or her. The evidence for CA is mixed for children with visual impairments. Parsons (1987), studying the age span from 6 to 19 years, did find higher internal LOC in older than younger children, whereas neither Agrawal and Kaur (1985) nor Jones and McGhee (1972) found significant CA effects in samples that were somewhat more limited in age range.

In any case, because of the conceptual component of LOC, mental age may be a more important correlate. Land and Vineberg (1965) evaluated children in the 6- to 14-year age range and found a significant correlation between mental age and LOC: as mental age increased, so did internal LOC. IQJs of course a derivative of mental and chronological age. The only study that has reported a test of the IQ^LOC relationship is that of Parsons (1987). There was not a significant correlation, but the IQ^range of 85 to 115 may have been too limited to allow a relationship to emerge.

In sum, the evidence is generally that more internal LOC accompanies a higher intellectual level in children with visual impairments. This is as expected given the generally increasing conceptual understanding of causality and interpersonal relationships.

Age of visual loss. Only Agrawal and Kaur (1985) reported an evaluation of LOC in relation to age of visual loss; the evidence was that the later the loss, the more likely LOC was to be internal.

Severity of visual impairment. Land and Vineberg (1965) evaluated LOC in relation to the severity of visual impairment in their group whose acuity ranged downward from 20/200; the correlation was not significant.

Gender. No study of children with visual impairments has reported variation in LOC with gender. The general pattern for Caucasian children is for boys to show somewhat more internal LOC than girls.

Variations in environment. For the most part the studies of LOC have unfortunately not evaluated variations as a function of aspects of the child's environment. Two studies, Land and Vineberg (1965) and McGuinness (1970), compared children from residential and integrated school settings, and neither found differences. McGuinness observed, "Despite the fact that subjects in the integrated settings have enjoyed significantly greater success in social independence their expectations of success as the result of their own efforts does not differ significantly from that of subjects from the special school setting" (p. 43). Aside from these studies, there are no other evaluations of LOC in relation to environmental characteristics.

Summary. With the exception of the interdependent relationship among chronological and mental age and IQ, the results reported here are of relationships of LOC with a single factor. The general lack of variation of LOC with these factors is noteworthy. It seems likely that LOC is indeed related to such factors as partial vision in complex ways, but univariate analyses are unlikely to reveal these relationships, whereas multivariate analyses are more appropriate.

LOC and functional behavior

A more important question has to do with the significance of LOC for areas of functional behavior. For example, what implications does relatively internal or external LOC have for aspects of adjustment and achievement?

Agrawal and Kaur (1985) evaluated the relationships among LOC and various attributes including anxiety and adjustment. Better adjustment was found in children with internal LOC, and higher anxiety was found in children with external LOC. (Anxiety and adjustment were negatively correlated.)

Parsons (1987) also explored the relationship between LOC and adjustment as measured by the Vineland Adaptive Behavior Scales (Sparrow et al., 1984). LOC was evaluated by use of the Children's Intellectual Achievement Responsibility Questionnaire (IAR) (Crandall, Katkovsky, & Crandall, 1965), which evaluates the child's view of his or her own responsibility for achievement.

On the various subscales of the Vineland, the older children generally showed higher scores, as expected. Moving to the key question of the relationship between LOC and adjustment, a significant relationship was found: higher internal LOC was associated with higher adjustment scores, both for the communication and the daily living subscales.

Causality is elusive in such a set of findings: it is not clear whether LOC or adjustment is causal of the other, or indeed whether both variables might be commonly caused by another constellation of variables related to child-rearing practices.

In sighted children, internal LOC has been found to be positively related to motivation and to school achievement (e.g., Lefcourt, 1976).

Jones and McGhee (1972) examined the relationship between LOC and academic achievement. As hypothesized, internal LOC was generally associated with good academic achievement. The IAR was also administered, and contrary to the hypothesis, a negative correlation was found between academic achievement and IAR scores. Generally, higher academic achievement was accompanied by lower perception of self- responsibility for that achievement. Jones and McGhee suggested that whatever the individual child's assumptions about self-responsibility for academic success, these may have been subjugated to a belief that for blind children in general, external factors are overriding.

Summary. Broad relationships have been found among LOC, age, adjustment, and achievement in these studies. It remains for future research to establish the causal relationships among variables and to discover other factors that might also be involved in what is undoubtedly a complex causal chain.

Related constructs

Several other constructs, such as expectations and level of aspiration, are similar to LOC in that they are hypothesized to be mediators of performance. One has to do with attribution of blame. Jervis and Haslerud (1950) evaluated early blind adolescents' reactions to having to perform a series of frustrating puzzles. They tended to show a higher frequency of intropunitive (self-blame) reactions than extrapunitive (attributing blame to others) or impunitive (intellectualization of blame) reactions. In that they tended to attribute their failure to their own shortcomings, this finding corresponds roughly to internal LOC.

Me Andrew (i948a,b) assessed level of aspiration by having the child make a prediction of the amount of hand pressure that he or she could exert, compared to what had been achieved on a prior trial. The reward situation was structured so as to put a premium on high values, except that if the child did not meet his or her own prediction, points would be taken away. Thus, the assessment was of reactions to success and failure on the hand pressure task. Generally the children were similar in their pattern of predictions to a sighted comparison group, although the children with visual impairments were inclined to react to failure by adjusting their subsequent predictions downward. These children were 10 to 15 years of age, with IQJto or above and with varying degrees of visual loss.

Social role expectations. The expectations of other people may be at least as important as the children's self-expectations in affecting behaviors.

Mayadas (1972) studied the congruence between the role expectations held by various "significant others" and the actual behavior of adolescents from a school for the blind. The children's self-expectations and their perceptions of the expectations of significant others were assessed.

Positive relationships were found between the quality of social behaviors of the children and (1) the expectations of significant others (parents, teachers, etc.), (2) the children's perceptions of the expectations of significant others, and (3) the children's self-expectations. On the other hand, there was no relationship between the children's behavior and the expectations of a group of people who had no particular experience with blind individuals. Thus the results strongly supported the notion of congruence between role expectations, both of children themselves and of those close to them, and actual behavior.

Mayadas and Duehn (1976) presented a further analysis of data from (apparently) the same sample. Performance on a variety of social behaviors (e.g., table etiquette, physical self-management, or personal hygiene) was evaluated and linked to various categories of expectations through multiple regression analyses. The categories included expectations by parents, counselors, teachers, and houseparents, as well as by the child. The child's perceptions of these various expectations were also tabulated and used as predictors of actual performance.

A general result was that a relatively small percentage of the variance in performance was accounted for by the categories of actual expectations or the child's perception of them. That is to say, a great deal of variance in performance is not accounted for by these variables.

More specific differences emerged. For example, girls' behaviors were more related to the expectations than were boys' behaviors. Mayadas and Duehn speculated that girls are more sensitive to demands of the social environment than boys are. Interestingly, girls and boys were equally unresponsive to external expectations about their social interactions with the opposite sex.

Generally, Mayadas and Duehn concluded that their results tended to contradict the "overall prevalence of the 'blind role' as the central organizing concept for the personality of children with visual impairments.

Despite a marked tendency toward conformity in the total sample, the subsamples suggest that visually impaired adolescents tend to assert themselves on meaningful behaviors" (p. 289). Further, "Blindness is not an all encompassing behavioral trait,. . . sociocultural variables do affect the behaviors of blind people just as they affect the sighted . . . significant others can help to de-emphasize the blind role and help to develop the individualized capabilities of the blind child within the context of his social reality and physical limitations" (p. 289).

Educational and occupational expectations. Bush-LaFrance (1988) evaluated the educational and occupational expectations of 105 visually impaired adolescents, based on their responses to a questionnaire. Questions were designed to distinguish between choices (e.g., "what would you like to do?") and expectations (e.g., "what do you expect to do?").

The responses were analyzed in relation to amount of visual loss, gender, self-reported school performance, socioeconomic status, and friends' educational plans. Visual status was a relatively weak negative predictor of occupational expectations: children with more vision had somewhat lower expectations. Academic performance and socioeconomic status were both positive predictors. Together these three variables accounted for 33% of the variance in occupational expectations. The visually impaired sample showed generally lower occupational expectations than an archival sample of sighted adolescents.

As for educational expectations, academic performance was the major positive predictor; socioeconomic status and friends' educational plans also contributed. These three factors accounted for 37% of the variance.

Visual status was a negligible factor. The educational expectations of the visually impaired sample were not substantially different from those of the archival sample of sighted adolescents. Gender was not a predictor of either variable.

Summary. On the whole, adolescents with visual impairments conceptualize their social roles and behaviors in much the same way that sighted children do, and they do or do not respond to significant others' expectations according to the same variables that characterize the social behaviors of sighted children. They do not seem to conform to a set of social expectations that might be thought characteristic of blindness.

The End
 


excerpt:
part III - chapter 11 of

Blindness and children - An individual differences approach
DAVID H. WARREN
Department of Psychology University of California, Riverside
Cambridge University Press, 2009

https://doi.org/10.1017/CBO9780511582288
 

Δ

23.Jan.2024
Maria José Alegre