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 Sobre a Deficiência Visual


Life Unseen

Selina Mills

excerpt

Old blind woman - Paula Modersohn Becker, 1899
Old blind woman - Paula Modersohn Becker, 1899

 

Living with it
Dark versus light

And God said, ‘Let there be light,’ and there was light.
God saw that the light was good, and he separated the light from the darkness.
God called the light ‘day,’ and the darkness he called ‘night.’
GENESIS, CHAPTER 1, VERSES 3–5 (KJV)

Long before having heard about Nandy the Neanderthal or misfiring my fork to find food on a plate, or even bumping into walls, tables and lampposts, I lived in the Holy City of Rome, where I worked as a journalist for Reuters news agency.

In the most beautiful and visual of cities, I began to understand that, possibly since Nandy first started grunting, or the fictional and mythic Oedipus wrenched his eyes out of his sockets, there has been the deep assumption a blind life is, or will be, a journey of abject misery and suffering – a state that is considered by many religions, including Christianity, a deficit and a burden, and very clearly a separate state to be deeply pitied.

To be honest, I spent most of my time in Rome feeling as if I was floating between a Henry James novel or a Fellini film – often at the same time. I loved walking to work in the early warm mornings, sniffing the miasma of melons and tomatoes and fresh basil from the markets. I spent many days watching nuns fly past on bicycles by my office window or listening to young American tourists yelling across the piazzas in the evenings. I did not even mind random nuns cooing over me, as I sometimes stumbled, gestured for a wall, or fell, and I would explain I had ‘ problemi di occhi’ , pointing to my eyes. Their sighs and tilting of heads, and cries of ‘ poverina ’ and ‘ carissima ’ felt entirely normal in a city jam-packed with holy folk with a penchant for prayer.

Occasionally, I used my white cane and sported fake designer sunglasses from the market, which I thought might navigate me a bit more safely. But whenever I did, quite a few nuns would stop me in the street or café and, without asking me, caress my face or stroke my hair. Some folks even offered me on-the-spot prayers (often to Santa Lucia or St Bridget, the patron saints of light and sight) and it left me wondering if I should stroke their hair or squeeze their cheeks back.

During my first month in Rome, for example, I was told by a kind priest whom I met in the piazza overlooked by statue of Giordano Bruno, a man burnt at the stake for believing the sun went around the earth, that a special mass had been held for my failing sight at the Venerable English College (where Roman Catholic English priests train). The whole college had prayed for me. I was deeply embarrassed, not only because I am not a believer of sorts, but I felt there were others far more in need of help.

By month two, a cute Scottish journalist asked me on a date, but on hearing my eyesight issues were not fixable, almost burst into tears. Hardly containing himself, he sniffed: ‘You are such a wee lamb . . . why did this have to happen to you?’ Wee I am not, and I was shocked at receiving pity for a physical problem I had absolutely no control over.

The date was quickly cut short – by me.

Finally, and after the weeping Scot, I became acquainted with my local friendly Swedish nun, with whom I would queue and gossip at the local bakery about such important things as what to do with sage in one’s cooking (you melt the butter and then add it, so it doesn’t burn). All was going well, until she one day asked about my eyesight. A few weeks later, she gushingly told me that her ‘sisters’ would continue to pray for my sight at the Swedish Convent at the Angelus (the waking bell every morning). It was all rather too much.

Who was this poor and pitiable person they were praying for? And why would I need such prayers? It was confusing.

And where did this sense of deficit come from? Why did blindness ignite pity? In other words, when did we decide that light was and is a metaphorical touchstone for truth, and darkness a symbol of death and decay? Perhaps unsurprisingly, birth, life and death come a great deal into it.

* * *

From our earliest sense of ourselves, lack of sight and light have been a very useful metaphor to understand where we come from and have been woven into so many creation myths.

The difference between light and dark, seeing and not seeing, or between one thing and another has been a useful way to explain how life, and our very existence, comes from the emergence of light. Many cultures, such as the ancient Egyptians, for example, believed the sun came directly from the mound or from a lotus flower that grew from the mound, in the form of a heron, falcon, scarab beetle, or human child. In other stories, Japanese myths said light particles came from a beaten and shapeless matter and rose, while sounds sunk down. The Hindu festival of Diwali signifies the victory of light over darkness, good over evil, knowledge over ignorance, and hope over despair. In the traditional homeland of the Navajo, in North America, the mists of light arise through the darkness to animate and bring purpose in the lower worlds. Closer to my own Judeo-Christian heritage, the Jewish festival of lights, Hanukkah, is a Jewish holiday which celebrates the victory of the Maccabees over the Syrian Greek army. The Rabbinic tradition states the Maccabees could only find a small amount of oil to keep the commemorative Menorah lit for one night, but it stayed alight for eight days. Light conquers even an oil shortage.

A less spiritual description of darkness, given to me by scientist friends, defines it as the absence of light – because a dark object absorbs photons, making it seem invisible to other objects with light and colour. In the art world, this absence is used to denote presence. If used in a positive way, with painting methods such as chiaroscuro , darkness is made to make us focus our attention on the action or person illuminated; it means that anything in the darkness is not seen much, if at all. Even the origin of the word ‘dark’ comes from the old Germanic ‘ tarnen’ , meaning to conceal.

Perhaps because of the need to bury our dead underground, or the notion of hell being below us, darkness, on reflection, has never had a good press.

Light, on the other hand, has been the creator and genesis of everything. Light, according to the assumed binary opposition, allows man and womankind to find a mate, hunt, fish, plant and survive on the earth. It allows humans to share knowledge (first by hieroglyphics, later printed matter and now digital screens), avoid danger and even find love by spying a desirable mate. Light, and thus sight, is the sense that above all allows us to live. Closer to home, the Judeo-Christian creation myth is all about the light separating from the dark. For in the beginning, as the very first book in the Bible tells us, ‘God said, “Let there be light,” and there was light’. And the thing about the light was that it was good. It therefore determined that ‘darkness’ was bad.

This was even before the sun separated from the moon on the fourth day of creation.

With this clear and binary division between light and dark, good and evil, knowledge and ignorance, it is hardly surprising that blindness, as portrayed in the Bible, became an emblem of foreboding, concealment and ignorance – and above all, of spiritual absence. In Leviticus, for example, Moses is instructed by the Lord that bodily imperfections, including blindness, lameness and a flat nose (who knew?) shall prevent people from being part of sacred rituals or approaching the altar in the synagogue. The worlds of Sodom and Gomorrah even tell us the terrible story of how the angels blind people trying to have same gender sex. To be blinded, in the Old Testament, was a severe misfortune or punishment, but rarely neutral or useful.

* * *

This notion of light and dark, good versus evil, truth versus lies permeated the more hopeful arrival of Christianity, and ran through the guide to being a good Christian: the New Testament. Sight and blindness were pitted against each other, whether in physical or written form, particularly as Christianity became widely spread, and more formulated during medieval times.

Across Europe, people from rich to poor were familiar with allegorical statues and stained-glass images of blind and seeing women, known as Ecclesia and Synagoga , many of which decorate the porticos of the great French cathedrals. My favourites are in Chartres and Notre Dame in Paris. At first glance, both images of the poised women look the same. Each stand side by side, regally dressed and holding a lance. Such images appeared across Europe from the twelfth century onwards and are occasionally found in illuminations and texts. Yet if you look carefully, Ecclesia , representing the Church, stands a little bit straighter, carries an unbroken sword, and stares wide-eyed at the onlooker.

Conversely, Synagoga is blindfolded and thus ignorant, holds a damaged sword displaying her loss, and is often little bit hunched in humility. By the thirteenth century, the blindfold did not only appear on Synagoga , but on any figure who did not accept and thus ‘see’ the arrival of Christ.

Stand in front of the main doors of the cathedral, and just on the left , at the threshold, is the ultimate Christian notion of blindness that people who could not read saw every day.

For the minority of literate and educated souls, and particularly for those who read the New Testament, there are also frequent references to blindness as being a terrible state. In Matthew, chapter 15, people are told to leave blind people as there is no hope for them: ‘Leave them; for they are blind and leaders of the blind; for if a blind mind offers to lead a blind man, they will fall into the pit together.’ Blindness was therefore a useful metaphor for spiritual blindness, and thus a way of showing how pagans, and the Jewish people, were ignorant and blind to the true Messiah. According to the New Testament scripture, such people were hidden from the light, with St Paul declaring in Corinthians part II:

But if our gospel be hidden, it is hid to them that are lost; In whom the God of this world hath blinded the minds of them which believe not, lest the light of the glorious gospel of Christ, who is the image of God, shine upon them.

Away from the Bible, theologians declared blindness as a form of mental disturbance – a person who was ‘ caecus’ , or ‘aimless and confused’, and a state set outside the earthly experience. The Bishop of Milan, St Ambrose, the fourthcentury commentator, referred to blindness as ‘passion’ and ‘madness’. St Jerome, of the same period, points to it as a form of ‘arrogance’. Similar texts report not only upon the blind as ‘incomplete’ – their bodies representative of their souls and even immoral – but worse, often as a stereotype who were to be mocked. The greatest church father of them all, St Augustine, wrote in his famed City of God that blindness caused ‘furore and dementia’. To lose one’s sight was to lose one’s mind – a theme that would be taken up again by psychiatrists in the early twentieth century and a description often applied to soldiers returning from the First World War, blinded by shellshock and trauma.

Such notions of blindness were anything but cheery reading, as it told me yet again the perpetual backdrop to being blind is about being defined with a separate, different identity, one that is usually full of tragedy and foreboding.

My reading certainly helped me to understand why blind people were and are still pitied, and why the Swedish nuns, the Scottish journalist in Rome and people who tilt their heads and pray for me are merely tapping into a millenniaold template of sightlessness. If the Bible and the images from its stories tell us it is natural to pity those individuals who are blind, or to fear them, and this notion has been handed down from century to century, it surely means I must, or at least attempt to, forgive those in society who know no better.

* * *

One adventure in the Holy City that completely disrupted my notions of these binary interpretations of blindness arrived during my last weeks in Rome, as after four years I decided to head back to the UK and start a new job.

As I have said, my time in Rome was a delight, and during my first year I made the rather eccentric decision to learn Latin – because that is what you do when in Rome. A dear friend introduced me to Father Reginald Foster at the Vatican, or ‘Reggie’ as he was widely known. He was the best scholar in town, she said, and he will make you roar with laughter and speak Latin. For when he wasn’t programming, in Latin, the Vatican ATM machine, or writing encyclicals for the Pope (he was the foreign secretary to the Vatican), Reggie gave his time to teach free Latin lessons for the ‘ ignoramus ’. These lessons were sometimes held in ancient school rooms at his university, or ‘ sub-aboribus ’ at his Carmelite monastery up on San Pancrazio – a hill just outside Rome. Reggie deeply believed that the study of languages – their construction, their meaning and tone – was the basis of all human knowledge. He also believed all this knowledge was best swallowed with really bad tepid white wine which he bought by the flagon, and insisted we drink to help us to become more loquacious with our Latin.

Sadly, my Latin and attendance at his classes – or experiences, as he called them – were terrible, but somehow Reggie and I became Amici Mirabelle . Dressed in his blue jeans and plumber’s jacket (much to the Church’s chagrin, Reggie refused to wear clerical dress), he would greet me in Latin: ‘ Cur tarde Venis Monocular ?’ ( Why are you late, one eyed one?) as I came into class; ‘ Allium Spiritus Relinquo !’ ( Avoiding garlic!) I would retort, as Reggie reeked of the stuff – he told us he ate raw garlic at 3 a.m. every morning to keep him healthy.

One of the most memorable moments with Reggie in Rome was, it turns out, one of my last times with him. I was about to head back to England to start a new job and attend the dinner where I would hear about Nandy the Neanderthal.

With garlic breath and all, he demanded I meet him at 8 a.m. sharp at St Anne’s Gate of the Vatican. Other friends had told me that as a parting gift from the city, he would often show departing students the Sistine Chapel, before the touristic hoards charged in, so I eagerly agreed.

Meeting me at the precise hour, with two Swiss guards protecting the threshold of the tiny city state, he roared his usual welcome of ‘ Monoculaaaar !’ so all could hear and marched me up some steps. He took me through silent marble corridors, with requisite scarlet-clad cardinals floating past, then charged up narrow stairs which circled up like a double helix and passed frescos of birds perched on climbing flowers (here he gave me the history of the word ‘grotesque’, which actually pertains to the paintings done in the grottos) and then suddenly, without warning, landed us at an innocuous blank wooden door. ‘That’s the Sistine Chapel,’ he pointed, ‘but we don’t have time today.

Another time!’ and with a deep grunt he charged past and led me down yet more corridors and stairs.

Finally, almost breathless from keeping up with him, I landed at another, slightly larger inconspicuous door. We entered and I found myself in the hallowed chambers of the Bibliotequa Apostolica Vaticana (Vatican library). Even at this early hour, the rooms were full of heads bowed over wooden desks, peering over documents and books. After walking through arcades of shelves, Reggie pulled up a small chair which could hardly take his robust figure, and sat down, thanking a rather flustered monk for his help. He waved the monk away, and then gestured his hand over a parchment that was laid out. ‘ Lire ! Read!’ he roared. I peered.

He explained: ‘It’s a seventeenth-century Vatican Commentary on the Decretals of Gregory IX, from circa 1621. It is by the blind Italian writer Doctor Prospero Fagnani. Doctor Caecus Oculatissimus – the blind, yet most far-sighted doctor.’ I nodded appreciatively but had no clue. As my Latin really is bad, at the start of this passage is Reginald’s translation.

The blind, orphans, widows and the aged are to be classified as ‘miserable’ persons . . . from them the Church expects nothing. They need not pay taxes, not make a contribution to the church. This does not mean to imply blindness indicates mental disturbance, for it holds that the blind in mind are to be more pitied than the blind in eye.

To be honest, at the time I was more impressed I was standing in the Vatican library than reading some ancient parchment (just think The Da Vinci Code with a garlic breath Tom Hanks as hero). I did not really register what Reggie was showing me. He roared in his native Milwaukee twang: ‘Don’t you see? HA! He is the blind, yet most farsighted doctor! Get it?? Get it??’ And smiled with glee.

Perhaps as most people would, I clocked and sighed how the doctor’s canonical text reiterated how blindness (and other disabilities) had long been understood as a state of loss and an impairment that was negative. The language shows how Renaissance society accepted how blind people’s state of not seeing was considered differently from sighted people: they lived in a separate world and beyond ordinary mankind. The interpretation also seemed to ratify to the Catholic community how blind people’s world could be infused with a spirituality that gave a peculiar innocence of mind. The doctor is ‘Doctor Caecus Oculatissimus – the blind, yet most far-sighted doctor’, reminding us, as in the legends of mythical times, that to be blind and clever must mean there is something exceptional about this person. He showed me, too – at least according to the Western tradition – that blind people, then as now, are presumed to be absent from truth, and thus prevented from contributing to society. For millennia, humans have had the need to use blindness as an opposition to something: good versus bad, truth versus lies, black versus white, up versus down. In all of these binary oppositions, blindness has come out as a negative and equal to darkness and ignorance.

I did not have much time to digest such thoughts as within a few minutes of showing me the text, Reginald threw himself upwards off the chair and almost dragged me out of a side door. Soon, panting and hurrying (Reggie had to get to work), we were climbing another long marble staircase into an extraordinary gallery covered in ancient pale green world maps. Then through another corridor, down another banal staircase, and boom! without a word, threw me back into the heat and pollution of St Peter’s Square, the morning sunlight beginning to warm the cream Bernini pillars that embrace visitors as they arrive.

We parted, knowing I was leaving Rome the following month. Happily, he did take me to the Sistine Chapel, and audio described the ceiling. I will never forget the moment when he yelled, ‘Everyone looks at the Creation, but just look at Noah and the Whale!’ We then moved back to our separate lives and homes – he to Milwaukee to retire to his Carmelite monastery and I to London. We did, however, stay in regular correspondence, written in his multicoloured pens, chiding me on my terrible Latin, and always beginning ‘ Salve Monocular !’ He even did some Latin lessons ( Ludo ) on YouTube, which were not as good as seeing him live, but give a sense of his teaching methods. He died in 2021 from old age. I feel honoured to have known and been taught by Reginaldis. Requiescat in pace , as they say in Rome.

Twenty-five years after leaving the Holy City and the unpitying Reggie, it seems to me, on reflection, that he showed me much more than simply an old manuscript by a blind doctor. Reggie admired and honoured the doctor for his brains, not his lack of sight. Blindness was for my mad, garlic-smelling priest a physical state that did not detract or denounce a person; they were simply in a state of not seeing. He also showed me that despite a whole city bulging with pity, there were people who decided their own terms of engagement and did not have to treat blind people as cases to be pitied, even in the past. In a sense, he gave me the gift of ownership; blind or not, I was in charge of living my own life.

And yet, to know that blindness is endlessly attached to pity, to ignorance, misery and catastrophe, and usually economic disadvantage, is not easy. To understand is one thing. To live with it day to day and to be treated accordingly is another. It is something I have not become used to, nor perhaps will I.

* * *

Then he touched their eyes, saying,
according to your faith be it unto you,
And their eyes were opened.
MATTHEW 10:29–30 (KJV)

As Reggie showed me, blindness was not all gloom and doom, and the idea of not seeing was not always a negative condition in the Christian tradition.

Away from the Canonical texts in the Vatican library, sometimes blindness could also be a useful conduit through which Jesus could prove his power on earth. As the Christian faith and its doctrine and liturgy became more formalized in the twelfth and thirteenth centuries, it also allowed the idea of blindness to have the wonderful potential to be a useful PR tool; it was the perfect way Christians could demonstrate their faith.

Key to this shift in understanding about blindness from classical and biblical times was the idea that owning blindness was through no fault of a person’s own actions or behaviour. This was in sharp contrast to the fixed understanding that man’s blindness was an irreversible part of his fate. Tiresias could do nothing to change his condition, despite his own mother begging the gods to intervene. Jesus, on the other hand, could change a man’s condition with just a word.

In the Gospel of St John, for example, Jesus is walking along the road and meets, we are told, a man who has been without sight since birth. His disciples, whose notions of blindness have been shaped by the Old Testament readings, ask him who had sinned, the blind man or his parents? Jesus is clear it is no one’s fault, least of all the blind man:

Jesus answered, neither hath this man sinned, nor his parents: but that the works of God should be made manifest in him. I must work the works of him that sent me, while it is day: the night cometh, when no man can work. As long as I am in the world, I am the light of the world. 1

Intriguingly, there is no back story that explains why ‘this man’ is blind (such as Tiresias spying on Athena in the bath) or what he might have done to become blind; he simply is blind. While other stories in the Bible could interpret blindness as an expression of a sinful spirit or soul, Jesus’ interpretation shifted the understanding into a neutral state, and one he could cure. To be blind was an impairment which God’s son could cure.

Again, in the Gospel according to Mark, Jesus says to the blind man, ‘Go thy way, thy faith has made thee whole’, and the man gets up and is cured. In another rendition in Matthew, Christ cures two blind men by touching their eyes. In John, Jesus applies a compact of spittle and clay to the blind man’s eyes and heals him. Repeatedly, the image of Christ healing the sick, lame and blind was part of Christ’s ministry on earth; restoration of sight by God’s son on earth was depicted in religious paintings, illuminations, art and gravestones, even from the early days of Christianity.

At the fourth-century Catacombs of Domitilla in Rome, archaeologists found a sarcophagus with a simple image on the front. A man kneels before Christ, and Christ places his hand on his eyes. Such images frequently appeared in the front portals of churches, as metaphorically, porticos were where the congregation stepped from the darkness into light.

So as Christianity grew, blindness became an essential linchpin through which the Church could gain a new currency and exert its power. For like Jesus himself, the Church and its operatives aimed to be man’s metaphorical spiritual guide, leading the blind man to the light of God and his son’s forgiveness. Simply becoming a Christian, via baptism, reflected the true shift from darkness to light.

An early convert to Christianity, Tertullian, explains that baptismal water washes away ‘the faults of the former blindness’ and makes us free for the eternal life.

Indeed, after baptism, the curing of blindness became a key indicator of a person’s spiritual health and how Jesus Christ’s influence could cure and heal. ‘I am the light of the World’, Jesus says in St John. ‘Whosoever follows me will not walk in darkness but will have the light of life.’ 2 We are repeatedly told Jesus cured the physically impaired (and specifically the blind) because the curing of them was a manifestation of God’s work.

* * *

In some ways I rather enjoyed the use of blindness as a fixing biblical metaphor because it allowed blind people to be shown the transformative power of prayer and faith. In the sixth-century Italian Codex of Rossano, for example, Christ is seen touching the eye of a blind man, as referred to in the Gospel of St John. By believing in the new saviour and his church, man moved from death (blindness) to salvation (sight). Similar images appear in narrative texts; in Syria sixth-century manuscripts show illuminated images of Christ healing two blind people at the same time.

It was fun to know too that the notion of God curing the blind was not entirely new and was mentioned in quite a few other historical texts. Gaius Cornelius Tacitus (56–120 AD), one of the greatest Roman historians, reports that King Vespasian healed a man with his spittle, and all were amazed.

Similar stories emerge in texts such as the Book of Tobit , or the Letter of Jeremiah. Many scholars also point out how in Isaiah, curing blindness was the pinnacle miracle, and a sure sign God was coming to save you: ‘And then shall the eyes of the blind be opened’ – a refrain taken from Isaiah 35 that would be heard set to music five hundred years later in Handel’s glorious oratorio Messiah. In the New Testament, the curing of blindness was now witnessed and in real time.

What was appealing about these miracle stories was they happened on earth – not away from the crowd, on some lofty plane or mountain, or reported after the event by a seer, but out there, for all to see, and blind people are cured by one man, Jesus, and his word alone.

* * *

The men travelling with Saul stood there speechless; they heard the sound but did not see anyone. Saul got up from the ground, but when he opened his eyes, he could see nothing. So, they led him by the hand into Damascus. For three days he was blind and did not eat or drink anything. 3

Perhaps the most well-known Christian story of transformation from darkness to light (and faith), and its impact, is the conversion of Saul to Paul. In this most dramatic of stories, Paul finally understands Jesus is his saviour. And yet while these stark binary oppositions were repeatedly imprinted, there was also at least one stark difference from antiquity – for Christians, blindness was not the result of sin or past misdeeds (although these interpretations persisted) but simply a state that could show the power of God and his son Jesus Christ.

Retold three times, and predominantly in the Acts of the Apostles, we are told about Saul, a fervent brutal oppressor of Christians, on his way to Damascus with his Christian-hating persecuting followers. As he walks, a great light falls around him, and he falls to the ground in shock and awe. A voice, who declares upon asking that it is Jesus, demands to know why Saul is persecuting the faithful. Importantly, no other companions are blinded, though in some versions of the story not all of them see the light, or hear the voice. But all are aware that something dramatic and powerful has occurred. After three days of blindness, Saul rises from his bed, is baptized in the new faith, regains his sight, and is reborn as Paul. He then goes out to spread the faith as Paul – a founding father of the Church and an evangelical apostle. His blindness was not a punishment, but rather a means for him and the witnesses (us and his companions) to see the transformation of an individual to Christianity. We as witnesses, along with Saul, get to see the sharp contrast between before and after the blindness.

By the mid-twelfth century, when Christianity’s litergical engine was in full drive, running the structure of daily lives, and considered the true path to eternal life, the concept of blindness had moved away from being viewed as a fixed, static, unchangeable state attached only to punishment and sin, to an almost sacred condition which had the possibility of transforming an individual’s life. A person could even be temporarily blind and then regain vision, thus showing a true sign of change.

In one way, I must admit to finding the stories of Jesus and his acolytes often very moving. How amazing to have the gift to change someone’s life in an instant and how relieving to know that blindness was not the fault of one’s parents, despite our need, these days, to blame them for everything. Blindness, the New Testament tells us, was a state that represented ignorance, and one that could reveal the truth. While this seemed to have very little to do with my own life, it explained the mythology the nuns and priests I met in Rome bought into, not to mention the mad Scottish journalist who wept with pity.

As always, however, the wave of good feeling somehow clashes with one’s own reality. What if you are not a saint? Not miraculously cured? Where does that leave you metaphorically and in actuality? Are you unloved, uncared for and invisible? Or an object of pity, due only charitable actions and the Pity Fest?

* * *

I did wonder, amongst all the blind men being cured, where were the blind women and what role did they play? After not too much searching, I found that parallel to the maledominated world of parables, priests and popes, and curing miracles revealed in the Bible, early Christian daily life was brimming with the lives of female saints and holy nuns.

While there are literally hundreds of blind saints to choose from in the Christian cannon (and I include the Byzantine saints as well), amongst all the stories, I was most drawn to St Lucy of Syracuse, Sicily, the Christian martyr who lived between 283 and 304 AD , and who is known in literature up to this day as the patron saint of light and eyesight. From Dante, Donne and Milton, St Lucy was and still is venerated across the globe, usually portrayed standing regally with her eyeballs in an open Bible. Her saint’s day is on 13 December, which had previously been the feast of the Winter Solstice. Her name, derived from Lux – light in Latin – not only referred to her inner truth, but the light she could offer the world.

St Lucy’s canonization is the story of a courageous woman; she turned down a suitor, based on her new Christian belief, and died for it. She disobeyed her family and refused to marry – and in the brief life that was left to her, she is adamant her God is the right God. She doesn’t give in. The rejected suitor reported her to the nonbelieving local governor, who in turn offered her a few ways out: swearing allegiance to Rome, offering a few sacrifices to the gods, both of which she refused. She chose death and was executed in 304 AD, only a few years before Emperor Constantine converted to Christianity. In later medieval versions, it is said the local governor removed her eyes as she claimed to foresee the downfall of Roman Emperor Diocletian. In more disturbing narratives, it is said she took out her eyes herself and when she was being prepared for burial in the family plot, her maidservants discovered her eyes were back in place.

As I read her story, I began to like the idea that a blind woman is a model to which we can aspire. She is an example of a life that could be motivation and helps us, particularly if we are Catholic, to identify with the qualities of a particular life. We can pray to someone who knows our exact problems and challenges – akin to group therapy today. The blinding of St Lucy shows, like her male counterparts who see the light, that she does not need her eyes to see the inner truth with her genuine holy nature, and courage comes in many forms.

* * *

Lesser-known medieval blind nuns had a slightly different take on how to handle blindness. Take St Odile of Alsace, for example. Her life story is so complicated it would take three volumes to cover it, and I must confess St Odile has become one of my latest pin-up heroines. What a lass! She travelled, she had people read to her, she loved her family despite them treating her badly, and had a wonderful cohort of nuns to support her. Even in death, she gave hope to thousands around Europe – a sort of medieval Helen Keller.

The knub of St Odile’s story is that she spends most of her life charging around mountain and vale, transforming, converting, and losing and regaining her sight. Born blind in 660 AD, our young heroine is abandoned to the Church by her father, who wants nothing to do with his blind daughter. Legend tells us that aged twelve she was taken and left to the local monastery where the local bishop baptised her Odile and she miraculously recovered her sight. This was miracle number one.

The story is then one of epic adventure. When Odile’s younger brother, Hugh, hears of his sister’s transformation, he goes to find her and returns home with her. Their father, still intransigent, is so angry his instructions have been defied that he kills his son in a fit of rage. In fear for her life, Odile flees across the Rhine valley to Freiburg in Germany (or in other versions, to Basel in Switzerland). Her father then pursues her, but the local mountain opens miraculously to hide her, and she finds shelter. This is miracle number two. Her father, exhausted, gives up his search, and as he returns home, after having been hit by falling stones and struggling through dangerous waterfalls, swears never to see or speak to his daughter again.

As Odile’s father becomes ill (and dare we mention, losing his sight) in old age, he yields to his fiery daughter’s conversion, and allows her to attend to him. Indeed, with his blessing and help, they found the Augustine monastic community of Mont St Odile, now known as Hohenburg Abbey, in the Bas-Rhin. Odile becomes its Abbess, and her father lives with her and remains under her care. He then dies, and after a vision of St John the Baptist, Odile founds a second monastery and hospital, specifically dedicated to help those with blindness and eye ailments.

Finally, in 720 AD (aged 60) Odile dies, but is again revived by the prayers of her sisters at the convent (miracle number three). Alive, she describes the beauties of the afterlife, takes communion, but sadly dies again; she is buried alongside her beloved and forgiven father and raised to sainthood within a hundred years of her life, with her name and fame becoming pan-European. Chapels, churches and monasteries were all consecrated to her honour, and pilgrimages to her grave were very popular for the masses.

While one can only admire Odile, and others such as St Margaret of Metola or St Cecilia, I found myself considering that not only did they have horrible deaths, so their blindness did not really help them, but I did not want to aspire to being perfect. What about having a bad day? Slurping your soup, or bumping into a lamppost? Even treading in dog poo? Odile’s life is not very real. Yet also, her life made me understand that the connection between blindness, ignorance and darkness was pervasive and tightly bound into the whole myth of blindness. The only reason it evokes pity is because sighted people imagine it to be worse than death, and thus feel pity – charity – for those afflicted. It is a model often referred to by academics as the Charity model – and it is not one I find very comfortable.

* * *

I began this journey into blindness thinking about how others assume blindness is and how darkness has been much aligned to not seeing. Partway through my career I met Father Reggie, and I learnt that blindness is not the identity every blind person has to adopt. Then I heard about Nandy the Neanderthal and decided to delve further and write a book. But one day, having relinquished my dance with the blind nuns and saints, I found myself having a night off , and watching one of those wonderful nature documentaries where you can’t remember the name of any of the species or fauna.

For a while, I was transfixed by the hundreds of beings deep beneath the waters where species not only thrive in the darkness but reject the light. Did you know, for example, there are anglerfish which have giant heads, sharp teeth and a big mouth like a fishing pole, with bioluminescent bacteria that attract prey. These live perfectly happily at 40 metres, even 50 metres in the deeps below.

Such creatures living quite happily in darkness reminded me how darkness is not all dark, and some medieval theologians and thinkers came to be more nuanced about God and darkness. Indeed, one medieval scholar, Hermes Trismegistus argued in his Corpus Hermeticum that the light of God could be almost blinding: ‘You have filled us with vision, and my mind’s eye is almost blinded in such a vision.’ In the same way, people retrospectively attributed more darkness-banishing miracles to Jesus; the Bible also offered treasures that showed us all that darkness was not always obscure and deathly, but could be useful in our path towards God. The well-known passage from St Paul’s Epistle to the Corinthians is quoted many times, as proof of the very ambiguity of light and darkness: ‘For now, we see through a glass, darkly; but then face to face: now I know in part; but then shall I know even as also I am known.’ 4  I am not sure if blindness has ever helped me find God, but as I watched the strange deep-sea fish, it was nice to know that sight and light are not always known in a binary fashion. Sometimes things are complicated.

Even now, as I lose what remains of my sight, I know that while my working eye sees misty fog and shadows of vision, my blind right eye does not see black or dark, but simply does not see. A quick chat with blind friends informs me that they experience the same; while blindness for them is not seeing, rather than a black sheet of velvet, for sighted people, the presumption is always the latter.

And yet, despite this factual knowledge, our modern-day notion of blindness is still attached and perpetuates the binary opposition which shows that darkness and blindness go hand in hand, which in turn leads to blind people being perceived as non-functioning, objects of pity and burdens on society. While there has always been a need for humans to marginalize, objectify, stigmatize those groups of people they fear or don’t like, this can go to the extreme of excluding any groups you don’t think are viable, whether blind or not.

As my grandmother would say, it’s an unpleasant thought, but still part of humanity.

 

NOTES
1 John, chapter 9, verse 3, King James version: William Collins (1957) edition.
2 John, chapter 9, verse 3, King James version: William Collins (1957) edition.
3 Acts of the Apostles, chapter 9, vv. 22–26 (KJV) King James version: William Collins (1957) edition.
4 St Paul’s Epistle to the Corinthians, verse 12, King James Version, William Collins (1957) edition.

The End
 

Selina Mills is an award-winning writer and broadcaster who is legally blind. She has regularly written for various publications including The Observer and The Spectator. She has a keen interest in disability and how it shapes our world. Selina’s first book, “Life Unseen: A Story of Blindness”, was published by Bloomsbury on July 13th 2023 and the paperback is launching in October 2024. Selina is also a regular broadcasters. She has been a contributor to the ground-breaking BBC/Loftus series “Disability: A New History” (2013) which has been rebroadcast around the world, and regular commentator to BBC Radio 4’s “In Touch” programme.  in Disability power 100


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excerpt of
LIFE UNSEEN
A Story of Blindness
author: Selina Mills
Bloomsbury Publishing (2023)

 


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16.Mar.2025
Publicado por MJA